On Wednesday, December 21, 2011 we went into the studio to record our single, “A Rare One.” We wrote it as a song of hope to comfort those directly effected by rare diseases. As part of the ‘Soaring Voices’ campaign, we shot a live music video in hopes of inspiring folks around the world to create videos of their own! If you’d like to submit a video or slideshow about your story of hope, head over to the Rare Disease Day website.
YOU can help support patients with rare diseases with your purchase of this mp3! Tricky Britches will donate 100% of all CDBaby sales of “A Rare One” to the following organizations:
The Foundation for Children with Atypical HUS. Interactive website for sharing information, inspiration and insight into aHUS issues.
The R.A.R.E. Project, Rare Disease Advocacy/Research/Education. Raising rare disease awareness,unifying and empowering a global rare disease community, and funding innovations that support rare disease research via the Children’s Rare Disease Network and the Golabl Genes Project..
NORD and Eurordis. NORD: the National Organization for Rare Disorders at www.rarediseases.org is dedicated to helping people with rare “orphan” diseases and assists the organizations that serve them. Eurordis at www.eurordis.org Eurordis: Rare Diseases Europe is an alliance of patient organizations representing more than 492 Rare Diseases in over 46 countries.
The Grahamtastics Organization. Providing laptops to hospitalized children, “Connecting kids when their world is out of reach!”
Songs of Love. “The Medicine of Music” – Dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges.
Special Thanks To:
Randy Visser, Video and Audio
Josh Ramharter (photography/video work)